Staff Profile
Avril Palmeri
Conect4Children Data Officer
- Address: John Walton Muscular Dystrophy Research Centre
Translational and Clinical Research Institute
Faculty of Medical Sciences
Newcastle University
International Centre for Life
Central Parkway
Newcastle upon Tyne
NE1 3BZ
Publications
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Articles
- Sen A, Palmeri A, Lee J, Hedley V, Thuet J, Lignon P, Cotonnec V, Leary R, Nally S, Straub V. Understanding paediatric data standards challenges through academia-industry partnerships: A conect4children (c4c) qualitative study. International Journal of Health Planning and Management 2022, 38(2), 277-543.
- Sen A, Hedley V, Owen J, Cornet R, Kalra D, Engel C, Palmeri A, Lee J, Roze J, Standing J, Warris A, Pansieri C, Leary R, Turner M, Straub V. Standardizing paediatric clinical data: The development of the conect4children (c4c) cross cutting paediatric data dictionary. Journal of the Society for Clinical Data Management 2022, 2(3), 4.
- Amadi C, Leary R, Palmeri A, Hedley V, Sen A, Siddiqui RQ, Kalra D, Straub V. How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium. Applied Sciences 2022, 12(3), 1604.
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Device/Product
- Owen J, Aurich B, Bae H, Cavallaro G, Cornet R, Degraeuwe E, Engel C, Felderhoff U, Franz A, Gandini P, Hedley V, Hung A, Kalra D, Karadag B, Leary R, Luethy T, Malik S, Marshall R, Medisetti Y, Nally S, Palmeri A, Peddineni M, Presijn L, Rasegaonkar S, Schaufelberger D, Scott K, Sen A, Sokillik C, Sridharan A, Stauch A, Thuet J, Turner M, Urru S, Vanderchaeghe S, Walsh M, Woodworth S, Yoon J. Data Standards User Guide for Pediatrics (Paediatrics User Guide). 2023. Austin, TX, USA: Clinical Data Interchange Standards Consortium (CDISC).
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Online Publication
- Palmeri A, Leary R, Sen A, Cornet R, Welter D, Rocca-Serra P. Creating a metadata profile for clinical trial protocols. Elixir FAIR Cookbook, 2023. Available at: https://faircookbook.elixir-europe.org/content/recipes/interoperability/c4c-clinical-trials.html#.